STAR ATTR-CM PSv Overview

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During the Workshop Series, We Heard from a Diverse Group of HealthCare KOLs

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Prioritized Moments that Matter (MTMs)

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  1. Online Prioritization Survey, N = 13 (8 Alexion Japan Respondents, 5 US-Based Alexion Respondents)

We Engaged 2 ATTR-CM Patients via Video Recording

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Mr. N
  • 83 years old, male patient
  • Lives in Nankoku-city, Kochi Prefecture
  • Retired, Lives with his wife. 
  • Enjoys visiting and watching his grandchildren grow; they live next door
  • Diagnosed with ATTR-CM in 2020, started treatment in April 2020
  • Treated at Kochi Medical School Hospital (geriatric/cardiovascular medicine department)
  • Also has spinal canal stenosis
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Overall – seems to have a hopeful outlook living with ATTR-CM
Mr. Y
  • 87 years old, male patient
  • Lives in Nankoku-city, Kochi Prefecture
  • Retired, lives by himself with support from his granddaughter
  • Diagnosed with ATTR-CM 4 years ago; started treatment 3 years ago
  • Treated at geriatric/cardiovascular medicine dept at Kochi Medical School Hospital
  • Also has RSD3PE syndrome
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Overall – finds living with ATTR-CM very challenging

Discussions from WS1-WS3 & the Survey Results

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